By Valerie Werkmeister
It is never easy to have a family member diagnosed with a serious disease, but when that family member is a child, the situation seems all the more heart-wrenching.
A nine-year-old boy, Hunter Boes, has been through a lot in his short life. He tragically lost his parents when he was only eight months old. His grandmother, Kim Sutton, has had custody of him ever since.
Hunter is a happy boy who always has a smile and loves hot wheels cars. He was like many other little boys until he started having seizures in kindergarten. Initially, Kim thought he would grow out of it. She attributed a long family history of relatives having febrile seizures and thought Hunter would follow suit. Unfortunately, that turned out not to be the case.
Hunter was diagnosed in May with a very rare seizure disorder known as Lennox Gastaut Syndrome. It affects less than five percent of the world’s population. So little is known about the disease that it is incurable. For now, Hunter is being treated with various medications, but he requires constant supervision. He has so many seizures during the day that he is unable to continue going to school. He only attended part of his third grade year last year and wasn’t even able to enroll for fourth grade.
Kim stated that the seizures affect his ability to learn and retain information. Doctors have also warned her that it may affect his behavior as well. Hunter experiences four different types of seizures. The type most people associate when they hear about a seizure—in which the person is in an active convulsive state—isn’t what he endures. Sometimes, he will become confused and stare off into another place and doctors explained to Kim this is called a “seizure state”.
It took approximately two years to diagnose Hunter’s condition. Kim found Dr. Lisa Smith at Riley Children’s Hospital in Indianapolis. He had a number of seizures, abnormal EEG’s and MRI’s, before the doctors were able to put a label to his condition. One 24-hour EEG found that Hunter had 48 seizures.
A few of his seizure episodes have left him unable to walk, talk or eat. Kim had to feed him intravenously. It was then that she finally decided to accept help for Hunter’s care.
“I’m the kind that don’t like to ask for help. I was raised to take care of my own. You just gotta keep going because I know there’s a lot of people a lot worse off than I am,” she said.
Fortunately, Kim now receives assistance for Hunter with home health nurses. It allows her to leave the house to run errands or buy groceries—things that neighbors and friends had been doing for her.
“It’s been since April that neighbors had been helping me with trips to the grocery. I’d give them a list and they’d go get it for me,” she said.
During the time that Hunter began having seizures and his diagnosis, Kim lost her job of 14 years at Walmart. She stated that the manager told her she had missed too many days of work.
The trips back and forth to Riley have been costly and the South Gibson Apostolic Chapel would like to do more for Kim and Hunter.
They are hosting a dinner and auction on Saturday, November 10, beginning at 5 p.m. The menu includes a long list of prepared food including ham, turkey, meatloaf, lasagna, real mashed potatoes (no fake ones on this menu) green beans, corn, dressing, sweet potatoes, and coleslaw. There will also be a variety of other side dishes and desserts. The dinner will cost $8 for adults and children 12 and under can eat for $5.
Organizers have also been hard at work collecting a number of donations for the auction. Some of the items include: a $200 gift card to Holder’s Furniture in Owensville, $250 rhino bed liner from Nix Welding in Poseyville, Longaberger baskets, collector Barbie dolls, Treasury Collection dolls, Thirty-one bags, oil changes from area auto shops, gift cards to restaurants such as: The Log Inn, Subway, McDonald’s, Papa Johns and Wendy’s, floral arrangements, wreaths, earrings worth $110 from Smith Jewelry, hair salon gift cards, a one-night stay at the Hampton Inn and several themed gift baskets including a coffee-themed basket and a Christmas basket.
Anyone who would like to donate other items to the auction should contact Dana Johnson at 729-7127.
Now that Kim has some assistance in Hunter’s care through the aide of home health nurses, it has also been brought to her attention that she’s unknowingly had some help all along. The family’s pet poodle, that once belonged to Hunter’s mother, is able to detect when Hunter is about to have a seizure.
“One of the nurses asked me if Max was specially trained to recognize seizures. When I told her no, she asked me to sit and watch Max one day,” Kim explained.
Sure enough, Max began to lick Hunter and then went to Kim and started to paw her. He repeated the action and within minutes, Hunter had a seizure.
“The nurse explained that people pay lots of money to have specially trained dogs who do this and here he has done it all along and I never realized it,” she said.
“I really want to thank everyone for their prayers, donations and support. I have received so many cards from people who are thinking about us and it’s just nice to know people are thinking about us,” Kim said.
A special fund has been set up at Fifth Third Bank under the name Hunter Boes/Kim Sutton. Donations can be made at any Fifth Third Bank branch.
By Valerie Werkmeister
- Debbie Koester Reed on Sixth River Days hits a home run
- dee on Hunter Education class announced
- jewels on A visit to the other New Harmony, Utah
- Alicer and Charles Christmas on J. Sue Wassmer
- Mark Lacey on Chief Deputy Buchanan retires from Posey Sheriff’s Department
- November 2013 (21)
- October 2013 (23)
- September 2013 (11)
- August 2013 (10)
- July 2013 (29)
- June 2013 (59)
- May 2013 (60)
- April 2013 (229)
- March 2013 (158)
- February 2013 (193)
- January 2013 (192)
- December 2012 (69)
- November 2012 (143)
- October 2012 (158)
- September 2012 (152)
- August 2012 (151)
- July 2012 (191)
- June 2012 (129)
- May 2012 (71)
Popular TopicsAlexandrian Public Library American Legion APL BBQ CDC Community Center Crafts Club Deaconess Hospital Evansville Gibson Southern Harmonie State Park Historic New Harmony Indiana INDOT Kiwanis Lady Vikings Lady Wildcats Main Street Maple Hill Cemetery Mater Dei Matthew Catholic Church Mount Vernon MSD MVHS New Harmony New York North Elementary North Posey Posey Posey County Posey County News Poseyville Purdue Extension Red Cross Reunion Southern Indiana Tell City United Methodist Church United Way University USI Viking Vikings Wadesville WMI